CHARGE Syndrome Foundation

County:

Statewide

Type of Organization:

Community Support

CONTACT

Phone:

(516) 684-4720

Other:

(800) 442-7604

Email:

Website:

ADDRESS

CHARGE Syndrome Foundation

318 Half Day Rd
# 305

Buffalo Grove, IL 60089

About

The journey of the CHARGE Syndrome Foundation began in 1982, in Columbia, Missouri, with the Deaf-Blind Project in the Division of Genetics, University of Missouri. A group of dedicated professionals got to work putting together valuable informational materials for families and parents who were dealing with the challenge of caring for their children with CHARGE syndrome. The journey of the CHARGE Syndrome Foundation began in 1982, in Columbia, Missouri, with the Deaf-Blind Project in the Division of Genetics, University of Missouri. A group of dedicated professionals got to work putting together valuable informational materials for families and parents who were dealing with the challenge of caring for their children with CHARGE syndrome.

Since those early days 34 years ago, the Foundation has grown significantly, spreading its impact across the US as well as over 25 countries. Its board and advisors are comprised of parents and professionals who volunteer their efforts pro bono towards the cause. This allows the Foundation to channel over 90% of funds raised towards directly benefiting individuals and families. The Foundation, including its biennial conference, is an indispensable resource for many of its members – a place to look for information, support, research and access to other parents and professionals.

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General Information

PH: 904-827-2200

VP: 904-245-1022

Outreach Department

PH: 904-827-2455

Parent Services

PH: 904-827-2212

VP: 904-201-4527

Transportation

PH: 800-992-8747

Health Care Center

PH: 904-827-2410

VP: 904-201-3910

Purchasing

PH: 904-827-2331

PH: 904-827-2356

Campus Police

PH: 904-827-2315